Thursday, April 02, 2009

Updated on Jess, me and Computer viruses!

I took Jessica to the Peds Cardiologist on Tuesday and the visit went pretty well. We were there quite awhile for tests and we still have to go to the lab for blood work. They did an EKG and an Echo. Everything looks about the same as last year: her right ventricle is very large, aortic valve is leaking between mild-moderate range, shunt is open and working. We discussed her pain and the fact that she is in pain 99% of the time... sometimes her level is up to 9 1/2 (according to Jess) and she cries when it's that high. The pain sometimes wakes her up during her sleep and then she can't get back to sleep for awhile. The Cardiologist reminded me of his conversation with the GI doc and since there isn't anything they can do to prevent the pain, he recommended sending us to a pain clinic. I'm hoping and praying that they will be able to make her more comfortable and increase her quality of life. I haven't had a chance to call them and set up an appointment yet but I hope to do that in the next couple of days.

We had to cancel an appointment with the psychiatrist yesterday since Jess must have gotten overtired from the visit to the Peds cardiologist and didn't get to bed until after 3:00am. She then woke up a couple of hours later in pain and didn't get back to bed until 8:00am. I didn't get to bed at all that night so I had to try to sleep when she did during the day and then after her aid came in the afternoon, I had to take another nap. I ran out of one of my own pain meds and have been in such pain. Fortunately Karl was able to pick it up at the pharmacy so I'm taking it again.

I saw my primary care doctor for my fibromyalgia and he sent me for blood work, etc. I haven't heard back from him yet but I'm supposed to schedule my annual female stuff. yuck! But it needs to be done. My doctor told me that two of the best things to treat fibromyalgia is sleep and exercise and I'm not getting much of either. It's frustrating to not be able to be on a regular schedule but there's not a whole lot I can do about that. Jessica and I were talking about feeling left out. She feels left out a lot since she can't go and do what her brothers can do and they rarely play with her. They are boys and not very interested in girly things. Good thing that her home health aids can play Barbies and Pokemon games with her. She really enjoys that. Anyway, back to my story, I was telling Jess that I felt left out a lot when I was in High School since my mom was sick for a long period of time. I took care of my younger siblings after getting home from school and I had to cook dinner, bathe my youngest brother who was 2 yrs old at the time and get him to bed... after that I had to stay up to do homework and then get up early the next morning to go to band and school and start all over again. My youngest brother even called me "Mom". My friends were out having parties and hanging out while I was home being a mom. Jess asked me if I ever wondered if I would get married and be a mom and I said sure... ever since I was a little girl I wanted to get married and have a family. She asked me, "You probably didn't know that you would have a daughter with heart problems, did you?" I responded that if I had my choice of a bunch of babies, I would have chosen her. I'm so glad that I'm her mom. Jess hugged me and I asked her if she would choose me for her mom and as we were embraced, she nodded yes. I told her that we were supposed to be together as a family and we will be a family forever. She then started talking about what a great dad she has and brothers, grandparents, etc. She just loves everyone so much.

Well, it's 3:30am and Jess hasn't gotten up since I put her to bed about an hour ago so she must be asleep.... and I'm about to fall asleep here at my laptop. Oh, speaking of computers... our family computer has been down for over 2 weeks now. It crashed and I found a virus but couldn't get rid of it. Karl took it to a place we had worked with before and they found over 200 viruses! Austin has recently downloaded a game online (without permission) and we wonder if that was one of the major viruses. They guy at the shop had to completely wipe the hard drive clean and reinstall windows, etc. He said that one of the viruses had disabled the Windows updates so we started getting more and more viruses. WHO DOES THIS? The last virus had a window pop up that looked exactly like Windows and it wouldn't allow you to start windows without entering your credit card number... and it said that it wouldn't be charged. We knew that was a scam and after finally being able to access our AVG anti-virus, we found multiple Trojan viruses but we couldn't get rid of them. I hope other people are smart enough to not put in their credit card numbers when that thing pops up!

As if we don't have enough going on, I'm struggling with dental and medical insurances denying payments for things they should have covered. OY! What a pain.

Thanks for stopping by..... and if you get a chance, hop on over to my craft blog: FancyCrafty{Me} where I''ve uploaded a few new cards. If it weren't for my crafts, I'd be in a loony bin, so thank goodness I have that!


Awesome Mom said...

It sucks when things seem to pile up on you. I hope that things settle down a bit for you soon!

P.S I love the cards you have been making.

Karen said...

I am so sorry Nancy. I hope you get some sleep. Life seems so overwhelming as it is for you, I am sure, and so much more without sleep!!! I love you. I think and pray for you all day long. (((HUGS)))

Anonymous said...

Hope you get caught up on your sleep and things settle down. :-)